Video Description: One million Americans are living with Parkinson’s Disease. This number is increasing and could double by 2040. Having a good understanding of disease progression, current supports and therapies, and an idea of what is on the horizon will better equip you to assist individuals with PD who want to be independent in their own homes.

Date: 09/13/2016

Author: Hosted by NYAIL. Presented by MFP Transition Center Nurse, Laura Bingell, RN.

Presentation Slides: Parkinson's Disease - An Open Doors Perspective (PDF)

Webinar Recording: Parkinson's Disease - An Open Doors MFP Perspective Webinar 2016-09-13

Video Description: Steve Holmes of the Self-advocacy Association of New York State, Inc., (SANYS) will present on the importance of person centered planning to help a person develop a life plan based on their needs, desires, dreams and goals. Person centered planning is the opposite of system planning; it puts the person in the middle and bases all decisions on the person’s point of view. For people with profound disabilities, family, friends and often staff members who have supported them in the past play a critical role in shaping a plan.

Date: 08/30/2016

Author: Hosted by NYAIL. Presented by Steve Holmes of the Self-advocacy Association of New York State, Inc., (SANYS).

Presentation Slides: Person Centered Planning in the OPWDD System (PDF)

Webinar Recording:

Video Description: Approximately 22 million Veterans reside in the United States today. Around 850,000 Veterans live in New York State alone. More than two-thirds of the Veterans residing in New York State have reached the age of 65 or above. Learning whether an individual served in the Armed Forces can prove to be a crucial component of providing the highest-quality services to help that Veteran maintain his or her independent living ability. Status as a Veteran can open the door to a tremendous realm of benefits, programs, and services that can assist the Veteran financially, improve the Veteran’s physical and mental well-being, and help the Veteran in arenas ranging from healthcare to housing. This webinar provides a basic but vital toolkit for independent living professionals interacting with Veterans and their families. It provides key information about eligibility for multiple benefits, programs, and services that assist Veterans and their family members, and informs participants about resources available to “cut through the red tape” and advocate for Veterans and their family members in these areas. Even more importantly, this course provides essential information about interacting properly with Veterans, helping participants gain a heightened understanding of challenges and experiences unique to Veterans and their families and establishing a greater level of cultural competency when working with these individuals.

Date: 07/25/2016

Author: Hosted by NYAIL. Presented byBenjamin P. Pomerance, Esq., Deputy Director for Program Development for the New York State Division of Veterans’ Affairs.

Presentation Slides:

Services for Veterans in New York State (PDF)
NYS Division of Veterans Affairs Directory (Doc)
NYS Veterans Laws Briefing Book July 2016 (PDF)

Webinar Recording:

Video Description:

The purpose of this webinar is to:

• Familiarize advocates with the current 17-A Guardianship process
• Educate advocates on how S.4983 will change the 17-A process

The current 17-A Guardianship process violates rights of people with developmental disabilities and traumatic brain injuries to due process and equal protection under the law. New York State's Olmstead report identified many of these rights violations. In response to this Report the Office for People with Developmental Disabilities has submitted a department bill (S.4983) to address these failures. The New York Association on Independent Living has asked Disability Rights New York, the Protection and Advocacy System for New York State, to educate our community on the 17-A Guardianship Statute in New York, to break down Senate Bill S.4983 and describe how this bill is designed to protect the civil rights of people with developmental disabilities.

Date: 04/06/2016

Author: Hosted by NYAIL. Presented by Jennifer Monthie, Esq., Director PADD, PAAT and PATBI Programs at Disability Rights New York.

Presentation Slides: Training on 17-A Guardianship Process (PDF)

Webinar Recording:

Video Description: The purpose of this webinar is to review various aspects of working with individuals who experience mental illness. We will review basic information about mental health conditions, why the Independent Living Philosophy is a perfect fit for working with this population, possible service options (waivers, MLTC, Mental Health Service System, Health Homes, Case management), as well as possible community resources.

Date: 04/28/2016

Author: Hosted by NYAIL. Presented by Laurie Carter of the MFP Transition Center Project.

Presentation Slides: Working with Individuals who Experience Mental Health Issues (PDF)

Webinar Recording: Working with Individuals who Experience Mental Health Issues Webinar 2016-04-28

Video Description: Join this webinar to learn about Strokes. Stroke is primarily a disease of the brain. However, the brain is the master of all the body systems, so a stroke can affect a person dramatically in unlimited ways. Since it is the 5th leading cause of death and the leading cause of adult disability in the US, we should increase our understanding of how to best assist stroke survivors in maintaining independence. We will discuss what a stroke is, the different kinds of stroke, risk factors, how it is diagnosed, some usual treatments, phases of recovery, resources for assistance and the lasting impact a stroke can have on an individual.

Date: 03/29/2016

Author: Hosted by NYAIL. Presented by Laura Bingell of the MFP Transition Center Project.

Presentation Slides: An Overview of Strokes (PDF)

Webinar Recording: An Overview of Strokes Webinar 2016-03-29

Video Description: Representatives of the Self-advocacy Association of New York State, Inc., will discuss our experience in engaging with individuals who live in Intermediate Care Facilities (ICF) about their options for support through the Money Follow’s the Person concept. As many of the people who live in ICFs require a lot of support to speak for themselves or express their preferences, we’ll also talk the importance of the involvement of family, friends, and direct support staff who know them well in the process whenever possible. Finally we’ll talk about interacting with the staff who manage and supervise ICFs.

Date: 02/05/2016

Author: Hosted by NYAIL. Presented by BJ Stasio and Steve Holmes of the Self-advocacy Association of New York State.

Presentation Slides: Engaging People with Developmental Disabilities (PDF)

Webinar Recording: Engaging People with Developmental Disabilities in the OPWDD System Webinar 2016-02-05

Video Description: Watch this webinar to learn about heart failure. We will discuss congestive heart failure as well as both left and right sided heart failure. The focus will be on congestive heart failure, also referred to as CHF. Our goal will be for you to have a better understanding of this disease and the impact it can have on those with whom you are working. We will discuss the types and classes of heart failure, definition, warning signs, symptoms and diagnosis, prevention, treatment options, living with heart failure, and advanced heart failure.

Date: 02/02/2016

Author: Hosted by NYAIL. Presented by Christine Trimboli of the MFP Transition Center Project.

Presentation Slides: Congestive Heart Failure (PDF)

Webinar Recording: Congestive Heart Failure Webinar 2016-02-02

Video Description: CIDNY’s study looked at the State’s ability to achieve its deinstitutionalization goals through effective administration of the federal survey requirement that reflects the nation’s long-term care policy: Section Q of the federal government’s assessment the Minimum Data Set (MDS). We focused on how Section Q’s referral question is working for people with developmental disabilities in New York City.

The project goals were: to evaluate the current New York State process for complying with Section Q; to make recommendations for application to people with developmental disabilities; and to develop training for local organizations on how to help their developmentally disabled clients (and families) better understand Section Q and the referral process to improve their chances of receiving care in the most integrated setting.

This training, based on our study, helps participants:

1. Understand the difference between PASRR and the MDS Section Q;
2. Understand federal Section Q referral requirements and the philosophy that supports them;
3. Understand how OPWDD’s Transformation Agreement relates to Section Q;
4. Articulate the rights of people with developmental disabilities under these new rules;
5. Articulate the perspectives of stakeholders;
6. Express the ways other states have complied with Section Q; and
7. Develop and share ideas for improving the Section Q referral process.

Date: 01/28/2016

Author: Hosted by NYAIL. Presented by Susan Dooha, Executive Director of Center for Independence of the Disabled, New York (CIDNY).

Presentation Slides: Section Q and People with Developmental Disabilities (PDF)

Webinar Recording:

Video Description: Evaluations for HCBS can be confusing, especially if you are unsure in how to interpret them. The NYS Universal Assessment System (UAS) and Patient Review Instrument (PRI) and Screen can be very useful in determining a person’s needs and required level of care. This presentation is to build on your understanding of the purpose and process, and how RUGs, CAPS, NFLOC influence what services an individual may need when transitioning. Join Christine Trimboli RN and Laura Bingell RN, Transition Center Nurses, for a joint presentation UAS and PRI/Screen for Transition Specialists.

Date: 01/19/2016

Author: Hosted by NYAIL. Presented by Laura Bingell and Christine Trimboli of the MFP Transition Center Project.

Presentation Slides: Understanding the UAS and PRI/Screen (PDF)

Webinar Recording: Understanding the UAS and PRI Screen Webinar 2016-01-19