NYAIL

Overview

Celebrating 35 Years of Independent Living in New York

Yesterday's Dream | Today's Reality | Tomorrow's Vision

September 10th-11th, 2013

The Hilton Garden Inn

235 Hoosick Street

Troy, NY 12180


ABOUT THE CONFERENCE

Approximately 250 people celebrated 35 years of Independent Living in New York at NYAIL's 2013 Statewide Conference.

Thirty-five years ago, the first Independent Living Center in New York was founded in New York City. Today, over 30 ILCs across the state continue to champion the rights and equality of all people with disabilities with a younger generation of leadership emerging. While the concept of Independent Living has expanded and become more widely recognized, there remains much work to be done to continue ensuring equal opportunities for all people with disabilities, as well as promoting the Independent Living philosophy both within the disability community and to the public.


WHO ATTENDED

The conference provided valuable information to almost 250 people with disabilities and their families, board members and staff of Independent Living Centers and other disability rights organizations, vocational rehabilitation professionals, policy makers, older New Yorkers, youth with disabilities, government agency representatives, and local business professionals.

 

PROGRAM BOOK

 

Keynotes

Keynote Speakers

 

sharon-lewis-bio

SHARON LEWIS serves in the dual roles of Acting Principal Deputy Administrator of the Administration for Community Living and Commissioner of the Administration on Intellectual and Developmental Disabilities (AIDD), within the Administration for Community Living.

From March 2010 to April 2012, Ms. Lewis served as the Commissioner of the Administration on Developmental Disabilities. Prior to her appointment as Commissioner, she served as the Senior Disability Policy Advisor to U.S. House Committee on Education & Labor, advising members of the Committee on legislative strategy and disability-related policy issues in education, employment and healthcare, and as a Kennedy Public Policy Fellow for U.S. Senate Subcommittee on Children & Families. Sharon is the recipient of numerous awards, including the 2010 Distinguished Leadership in National Disability Policy Award and the Consortium for Citizens with Disabilities Chairman's Award.

In Oregon, Sharon worked on public policy for the Oregon Developmental Disabilities Coalition and for the Arc. She served as the co-chair of the Oregon Family Action Coalition Team, founded DisabilityCompass.org and managed the Oregon Partners in Policymaking Program, working with individuals with disabilities and family members to participate in policy decisions at all levels. Sharon is a parent to three daughters, including one with disability. She is a native of Michigan and a graduate of Washington University in St. Louis.

 
jim-weisman-bio

JAMES J. WEISMAN, ESQ is Senior Vice President and General Counsel of United Spinal Association. Since graduating from Seton Hall University Law School he has represented disabled people and organizations of disabled people in order to enhance the quality of their lives and to protect and promote their civil rights. For over 30 years, he has been General Counsel for the Eastern Paralyzed Veterans Association, now called United Spinal Association, where he provides legal assistance in all of their endeavors.

In July 1995, he became a founding member of the Board of Directors of the American Association of People with Disabilities and in 2003 was elected Chairman of the Board. He was a key negotiator with members of Congress in drafting and supporting the passage of the Americans with Disabilities Act (ADA). In 2004, he was presented with the Universal Accessible Transportation Award by Transportation Secretary Norman Mineta. In 2002, his suit against New York City was settled for 218 million dollars to be spent on installation of curb ramps for wheelchair users. In March, 1996, President Clinton appointed him to the Architectural and Transportation Barriers Compliance Board (Access Board). In 1994, he was presented with the Governor's Advocacy Award by Mario Cuomo for his Americans with Disabilities Act efforts. In 1991, he was appointed to the U.S. Department of Transportation's Advisory Committee to promulgate a regulation implementing the ADA. He was also appointed by Governor Cuomo to a task force to insure New York State's compliance with the ADA.

He commenced a lawsuit in 1979 against New York City's Metropolitan Transportation Authority, which was successfully settled in January 1985. This settlement agreement resulted in an accessible bus network; the rendering of key subway stations accessible by installation of elevators and the creation of a paratransit van service supplement. In 1989, he settled a lawsuit in Philadelphia which paralleled the New York agreement. The transportation provisions of the Americans with Disabilities Act are based on the Settlement Agreements in New York and Philadelphia.

He is routinely consulted by disabled people, advocates, attorneys, employers, and transit operators who wish to employ or provide services to people with disabilities. From 1977 to 1979, he was a staff attorney with Community Action for Legal Services, Inc., where he instituted the first legal services project in the nation designed to meet the needs of disabled poor persons. Resides in Oyster Bay, New York.

 

Schedule


Tuesday, September 10, 2013


6:00 - 9:00 am
Exhibitor Setup: Ferris Foyer

7:30am - 5:00 pm
Registration Table Open

8:00 – 9:00 am
Continental Breakfast

9:00 – 10:15 am
Opening General Session
Keynote Speaker: Sharon Lewis, Acting Principal Deputy Administrator of the Administration for Community Living and Commissioner of the Administration on Intellectual and Developmental Disabilities (AIDD)

10:45 - 12:00 pm
Concurrent Workshop Sessions
  • Overview of Key OPWDD Initiatives and Objectives
    • Gerald Huber, Deputy Commissioner Person-Centered Supports, Office of People with Developmental Disabilities
  • Engineering That Matters: An Undergraduate Engineering Design Experience in Service of the Disabled and Elderly Communities
    • George D. Catalano, Binghamton University
    • Cheri Robinson, Southern Tier Independence Center
  • Capacity Building Opportunities between Aging and Disability Services
    • Susan Hoger, Resource Center for Accessible Living, Inc
    • Anne Cardinale, Ulster County Office for Aging
  • Developing a Strategic Plan for your ILC
    • Edward L. McCormick, McCormick Consulting Services, Inc
  • Update on Long Term Care Initiatives within NYS Department of Health
    • Mark Kissinger, Director, Division of Long Term Care, Department of Health
  • Since 'America '73' - The NY Movement's Accomplishments, Past and Future
    • Warren Shaw, Historian
    • Bobbi Linn, Disability Advocate
    • Anna Fay, Independent Care System
    • Denise Figueroa, ILC of the Hudson Valley

12:00 – 12:30 pm
Exhibitor Break

12:30 – 1:45 pm
Luncheon

1:45 - 3:00 pm
Concurrent Workshop Sessions
  • Medicaid Mandatory Managed Long Term Care: Observations from Consumer Viewpoint in First Year
    • Valerie J. Bogart, New York Legal Assistance Group
  • Assessing the Unment Needs of Older Individuals: A Community Collaboration
    • Chad W. Underwood, Access to Independence of Cortland County, Inc
    • Judy K. C. Bentley, State University of New York College at Cortland
    • Elizabeth Haskins, Cortland County Area Agency on Aging
  • The Latest on High School Diploma Options and Alternatives
    • Julie Keegan, Disability Rights New York
  • Panel: Disasters, Hurricanes, Snow Storms, Floods, What We've Learned About Disaster Preparedness for People with Disabilities
    • Margi Trapani, Center for Independence of the Disabled, NY
    • Sue Ruff, Southern Tier Independence Center
    • David Whalen, Niagara University
    • Julie Cardone, Commission for the Blind
  • Assessing the Health of your CIL
    • Paula McElwee, Independent Living Resource Utilization
  • Independent Living in Video: Our History, Our Leaders, Our Vision

3:00 - 3:30 pm
Exhibitor Break

3:45 – 5:00 pm
Concurrent Workshop Sessions
  • New State Disability Initiatives
    • Jeff Wise, Executive Director, NYS Justice Center
    • Tim Clune, Executive Director, Disability Rights New York
  • MRT Affordable Housing Initiative
    • Liz Misa, Deputy Medicaid Director, Office of Health Insurance Programs, NYS Department of Health
    • Doug Hovey, Independent Living Inc
    • Paul Feuerstein, Barrier Free Living
    • Ted Houghton, Supportive Housing Network of New York
  • Lead On: Bringing the Next Generation to the Table
    • Stephanie Orlando, YOUTH POWER!
    • Zach Garafalo, YOUTH POWER!
    • Melanie Hecker, YOUTH POWER!
  • NYS Municipality Response (or lack thereof) to the Disability Community
    • Dave Whalen, Niagara University
  • Disability Competence: An Experiential Learning Approach
    • Anna Fay, Independence Care System
  • Independent Living in Video: Our History, Our Leaders, Our Vision

6:00 – 10:00 pm
Dinner & Evening Program, featuring the band Flame


Wednesday, September 11, 2013


7:30am - 5:00 pm
Registration Table Open

8:00 – 9:00 am
Continental Breakfast

9:00 - 10:15 am
General Session
Keynote Speaker: James Weisman, Senior Vice President and General Counsel of United Spinal Association

10:15 - 10:45 am
Exhibitor Break

10:45 - 12:00 pm
Concurrent Workshop Sessions
  • The Affordable Care Act: New Coverage Options and Protections Coming
    • Heidi Siegfried, Center for Independence of the Disabled, NY
    • Greg Otten, Center for Independence of the Disabled, NY
  • 23 years after ADA: The Transportation Problems that Remain Unsolved
    • Jim Weisman, United Spinal Association
  • How to Build Ramps to Make Homes Accessible Without Government Funding
    • James Karasek, ARISE
    • Kristin Rabideau, ARISE
  • Fearless Feedback: Optimizing People Resources with Self-Management and Engagement
    • Wally Hauck, Consulting with Independent Living
    • Beth Abarca, Independent Living, Inc
  • Independent Living in Video: Our History, Our Leaders, Our Vision

12:00 – 12:30 pm
Exhibitor Break

12:30 – 1:45 pm
Luncheon

1:45 - 3:00 pm
Concurrent Workshop Sessions
  • Grassroots Organizing
    • Chris Hilderbrant, The Center for Disability Rights
  • Housing Advocacy & Services: Creating Order Out of Chaos
    • Aaron T. Baier, Access to Independence of Cortland County, Inc
    • Audrey Jones, Access to Independence of Cortland County, Inc
  • “Of all the forms of inequality, injustice in health care is the most shocking and inhumane”
    • Lourdes Rosa-Carrasquillo, Center for Independence of the Disabled, NY
  • Transition: Facing the challenges of achieving independence after completing a secondary education
    • Sarah K. Lanzo, Independent Living of Niagara County
  • Surviving and Thriving in a Managed Care Environment
    • Merrill Friedman, Amerigroup Corporation
    • Bruce Darling, Center for Disability Rights
  • Independent Living in Video: Our History, Our Leaders, Our Vision

3:00 - 3:30 pm
Exhibitor Break

3:45 - 5:00 pm
Concurrent Workshop Sessions
  • The Ongoing Federal Budget Fight: Action Campaigns Across New York
    • Mark Hannay, Metro New York Health Care for All
    • Mary Clark, Citizen Action of New York
    • Heidi Siegfried, Center for Independence of the Disabled, NY
  • Community First Choice Implementation Update
    • Bruce Darling, Center for Disability Rights
    • Norain Siddiqui, Center for Disability Rights
  • Customized Employment: A Personalized Approach to Job Placement and Retention
    • Katrina Reese, Job Path, Inc.
    • Ryan Finger, Job Path, Inc.
  • Making Healthcare Accessible to People with Disabilities
    • Marilyn E Saviola, Independence Care System
  • Independent Living in Video: Our History, Our Leaders, Our Vision

 

Workshops

Workshops:

  • Independent Living in Video: Our History, Our Leaders, Our Vision
    A video montage of our Dynamic History. Remembering our past to create a better future. Also, on Tuesday evening a selection of Disability related feature movies will be available for viewing.

  • As OPWDD pursued development of the People First Waiver, they worked with CMS to define priority elements of system transformation, including: expanding opportunities and supports for employment; expanding community service options, including supportive housing and community-based services; expanding self-direction options, and creating opportunities for people to move from institutions to integrated settings. Learn more about the many reform initiatives underway in the OPWDD system.
    • Gerald Huber, Deputy Commissioner Person-Centered Supports, Office of People with Developmental Disabilities

  • A two semester capstone design course sequence is the culminating challenge facing undergraduate bioengineering majors at Binghamton University. Student teams are challenged to design, fabricate, test and deliver devices to clients under the careful tutelage of engineering faculty advisors. Over the course of the last two years, the focus of the design experience has been in developing devices for the disabled and elderly community in the Upstate New York region. A list of successful projects include a water flotation device for a resident with cerebral palsy, an automatic pill dispenser for a quadriplegic resident, all terrain wheel chair and assistive rowing device for guests at Sky Lake Camp in nearby Windsor, New York and a web-based practice site that serves to augment the efforts of a practicing speech therapist and an inexpensive lift system for an elderly resident who otherwise would remain house-bound. The actual procedure that is followed for soliciting and identifying design projects will be described, followed by an opportunity for participants to identify their own possible projects for inclusion in this year's capstone design class.
    • Dr. George D. Catalano, Professor of Bioengineering and Faculty Master of Apartments Community, Binghamton University
    • Cheri Robinson, TRAID Coordinator and Accessibility Consultant, Southern Tier Independence Center

  • The missions of the OFA and the ILC are remarkable similar yet service provision has been slow to match. In Ulster County we have developed a collaboration that improved service provision through cross referrals, cross training, sharing staff and participating more actively in each other's community events. Using a power point presentation as a basis for discussion we will provide specific examples of activities, communication, shared staff and the events that lead to a successful more sophisticated partnership creating a win-win situation for both organizations and clients.
    • Susan Hoger, CEO, Resource Center for Accessible Living, Inc.
    • Anne Cardinale, Director, Ulster County Office for Aging

  • This workshop will focus on the key elements of developing a strategic plan, preparing Independent Living Centers to develop and expand their ability to navigate the future, while managing constant change.
    • Edward McCormick, McCormick Consulting Services, Inc.

  • Learn about the multiple intersecting long term care initiatives underway through the NYS Department of Health, including the implementation of Managed Long Term Care, Fully Integrated Duals Advantage (FIDA) demonstration the Balancing Incentive Program (BIP), and the expansion of the Money Follows the Person program.
    • Mark Kissinger, Director, Division of Long Term Care, NYS Department of Health

  • "Since America '73 – The NY Movement's Accomplishments, Past and Future"
    Forty years ago, the PBS series "America '73" aired an unprecedented full-length profile of the then-novel Disability Rights Movement, including a startlingly frank panel discussion. In the fortieth anniversary of that broadcast, a panel (including several original participants) will look back at the accomplishments of the past forty years, assess the extent to which the hopes and discontents of that era have been addressed, and look ahead to the agenda for the next generation.
    • Warren Shaw, Historian
    • Anna Fay, Independent Care System
    • Marilyn Saviola, Independence Care System
    • Denise Figueroa, ILC of the Hudson Valley

  • After seven months of mandatory enrollment in New York City, Valerie will address concerns about continuity of care, access to services for high-need individuals, grievance and appeal rights, and other issues affecting access.
    • Valerie J. Bogart, Esq., Director, Evelyn Frank Legal Resources Program, New York Legal Assistance Group

  • Stakeholders and service providers for people with disabilities are not always aligned to advance the common goals of equality, opportunity and inclusion in all aspects of community life. In Cortland County New York, a like-minded collaboration of higher education, ILC and Aging experts produced a needs assessment that revealed opportunities for deepened understanding of the unmet needs of older individuals who are most at risk for falling through service gaps, either due to isolation stemming from disability, and/or lack of access to communication, information and transportation.
    • Chad W. Underwood, Chief Operating Officer, Access to Independence of Cortland County, Inc.
    • Dr. Judy K. C. Bentley, Associate Professor, Foundations & Social Advocacy Department, State University of New York College at Cortland
    • Elizabeth Haskins, Executive Director, Cortland County Area Agency on Aging

  • Participants will gain a practical understanding of the many recent changes in diploma requirements and alternative credentials for students with disabilities, including the Regents and Local Diplomas, Skills and Achievement Credential, NYS Career and Occupational Studies Certificate, the GED and others. We'll also cover strategies for success in achieving these credentials.
    • Julie Michaels-Keegan, Disability Rights New York

  • Disasters, Hurricanes, Snow Storms, Floods – What We've Learned about Disaster Preparedness for People with Disabilities.
    Since September 11th, people with disabilities have experienced what it's like not to have a plan for emergency preparedness that includes us. This panel will join all of its attendees in identifying where the gaps are, what we've documented, and how local and state policymakers can help.
    • Margi Trapani, Center for Independence of the Disabled, NY
    • Sue Ruff, Southern Tier Independence Center
    • David Whalen, Niagara University
    • Julie Cardone, Commission for the Blind

  • If RSA were to review your CIL tomorrow, would you be ready? This training, developed directly from RSA's onsite review tool, walks you through what to do (and not to do!) to prepare for an RSA onsite review or to conduct your own internal review to assess the health of your CIL.
    • Paula McElwee
    • McElwee is the Technical Assistance Coordinator for ILRU, supporting CILs that need intensive support (usually referred by RSA or the state IL Unit) and centers that self-refer for specific TA needs. She has been involved in IL since 1979, when she served as the director of one of the first ten centers funded under the Rehab Act. She has served on a SILC, as a board member for a CIL, and as an interim director for four California centers. She lives in Fresno, CA.

  • New State Disability Initiatives
    On June 1, 2013 Disability Rights New York (Disability Advocates, Inc.) became New York State's designated Protection and Advocacy System and Client Assistance Program (P&A/CAP), assuming responsibility for all of the P&A/CAP Programs in the state. Shortly thereafter on June 30with Special Needs began operations. The Justice Center is a new state agency created through legislation known as the "Protection of People with Special Needs Act" to reform how the state protects people with disabilities from abuse and neglect.
    • Jeff Wise, Executive Director, NYS Justice Center
    • Tim Clune, Executive Director, Disability Rights New York

  • MRT Affordable Housing Workgroup Initiative
    In 2011, Governor Cuomo created the Medicaid Redesign Team's Affordable Housing workgroup to evaluate and make recommendations regarding New York's programs of supportive housing. Since then, over $150 million in funding has been allocated to increase housing options for people with disabilities through increased State agency housing and service subsidies, the creation of new supportive housing units, capital funding, and new pilot programs, including a Nursing Home to Independent Living Rapid Transition program. Learn more about the committee's work and the projects funded todate from this panel of workgroup members.
    • Liz Misa, Deputy Medicaid Director, Office of Health Insurance Programs, NYS Department of Health
    • Doug Hovey, Executive Director, Independent Living Inc.
    • Paul Feuerstein, President/CEO, Barrier Free Living
    • Ted Houghton, Supportive Housing Network of New York

  • Lead on: Bringing the next generation to the table
    In this workshop YOUTH POWER! (YP!) employees will discuss strategies centers can use to support emerging young leaders. We will give an overview of YP! and explain the support we can offer centers. We will also ask centers to support our efforts to grow and diversify the YP! network through specific requests. We will challenge centers to think of how they can include youth and young adults in leadership roles. The workshop will include how-tos and useful information that centers will be able to use.
    • Stephanie Orlando, Executive Director, YOUTH POWER!
    • Zach Garafalo, Assistant Director, YOUTH POWER!
    • Melanie Hecker, Youth Engagement Consultant, YOUTH POWER!

  • NYS municipality response (or lack thereof) to the disability community
    Niagara University has developed an innovative program called Town Hall Training. This customized curriculum is designed to train and educate individuals to work with their municipal representatives to respond to the needs of people with disabilities and ensure awareness, acceptance and accessibility. Conversely, it educates municipal employees on how to properly respond and work with the disability community while providing the necessary tools for both inclusion and compliance. This program is a direct link to ILCs throughout NYS, and directs municipalities to partner with them.
    Also addressed will be the First Responders Disability Awareness Training rollout to Law enforcement throughout NYS, the initial phase of Firefighter/EMS training, and the development of the 911 operators program. Attendees will learn how they can become active in this program.
    • Dave Whalen, Statewide Project Coordinator, Niagara University

  • Disability Competence: An Experiential Learning Approach
    Independence Care System (ICS) is a Medicaid Managed Long Term Care Plan that focuses on serving adults with physical disabilities. ICS developed this training for its staff to increase their understanding of the disability experience and their awareness about their own emotional responses to disability. The expected outcome is a greater comfort level for communication with members in general and especially if there is conflict or disagreement. Key content areas that are unique to disability were identified, such as isolation and institutionalization. The training methodology includes guided imagery, small and large group discussion, interactive presentations, and role plays.
    • Anna Fay, Director of Independent Living Services, Independence Care Systems

  • With Exchange enrollment beginning next month, this workshop will cover new health coverage options in 2014, including expanded Medicaid eligibility and premium subsidies for the new health plans that are becoming available for people who do not have coverage through their jobs. Presenters will use simulated case studies to illustrate how to help consumers to enroll in Medicaid or select a health plan with the benefits, providers, premium, and cost sharing that works best for them. Presenters will solicit hypothetical case examples from the audience for this exercise. Attendees will also learn how to appeal eligibility determinations, premium subsidies, and cost sharing caps. We will review existing consumer protections as well as those coming in 2014. For individuals who have an official disability determination, we will discuss other available programs, including the Medicaid Buy-In for Working People with Disabilities and Excess Income (Spenddown). Participants will leave with at least one idea for helping more people enroll in the new coverage options available through heath reform.
    • Heidi Siegfried, Esq., Director of Health Policy, New Yorkers for Accessible Health Coverage, Center for Independence of the Disabled
    • Greg Otten, Community Health Advocates Coordinator, Center for Independence of the Disabled, NY

  • 23 years after ADA: The Transportation Problems that Remain Unsolved
    Long time disability rights attorney and transportation advocate, Jim Weisman, will review the transportation problems that remain for people with disabilities 23 years after the Americans with Disabilities Act, including the ongoing fight for accessible taxis in New York City.
    • Jim Weisman, United Spinal Association

  • If your county does not offer funding for ramps, this session will explain how to develop a program which uses volunteer labor and materials paid for through donations to build ramps for consumers. Learn about the building codes, community involvement and how to prioritize need.
    • James Karasek, Manager of Independent Living Skills, ARISE
    • Kristin Rabideau, ARISE

  • Fearless Feedback is a leadership model and set of tools enabling organizations to optimally engage the hearts and minds of all employees even in the face of challenging times. Fearless Feedback improves the work environment so employees take responsibility for their own performance and development while willingly improving the quality of their interactions. Fearless Feedback results in higher quality communication and a greater level of personal responsibility.
    • Wally Hauck, PhD, CSP, President Optimum Leadership
    • Beth Abarca, Director of Human Resources, Independent Living, Inc.

  • Grassroots Organizing
    Systems advocacy is a core ILC function with the purpose of removing barriers that persons with disabilities encounter in independent living. Systems advocacy's goal is to alter the relationships of power and effect long-term change. Using the tools of grassroots advocacy including the 'pitchfork approach', people mobilize their knowledge and energies, pick priorities, educate the community and celebrate victories.
    • Chris Hilderbrant, Center for Disability Rights

  • All communities struggle to overcome housing issues. Often, housing services, providers, developers, and governments are disconnected. They work independently with minimal knowledge of the others' needs and efforts. Affordable, accessible and integrated housing is an area severely lacking in most communities. This workshop will offer a framework and tools to make a significant impact in these housing areas through persistent advocacy and development of unique services.
    • Aaron T. Baier, Consumer & Systems Advocacy Coordinator, Access to Independence of Cortland County, Inc.
    • Audrey Jones, Architectural Barrier Programs Coordinator, Access to Independence of Cortland County, Inc.

  • Health care is changing. Our goal is to make it change for the better. This workshop is about one tool to use to change things in health care for the better. We will review civil rights complaints to the U.S. Department of Health and Human Services Office of Civil Rights. What does disability discrimination look like in health care? How do we collect the evidence about discrimination? Do we have enough evidence for a complaint? How do we file the complaint? What will happen after we file the complaint? Are there other places to complain to? What are the advantages and disadvantages of each?
    • Lourdes Rosa-Carrasquillo, Esq., Center for Independence of the Disabled, NY

  • The needs for students with intellectual disabilities are going unmet in our educational system. High schools are required to provide curricula established by the State Education Department that emphasize contents dictated by the Board of Regents. Many students with a mental illness diagnosis and students with physical, emotional, or sensory disabilities are completing their high school education with only a certificate, unprepared for continuing education, employment, or independence. Without transition services these youth may be unable to function in the community as they approach adulthood. Western New York Independent Living (WNYIL) offers a transition program to high school seniors with intellectual disabilities to increase youth involvement in Independent Living skills and disability rights advocacy. This project allows an underserved population to receive the knowledge of and the means to exercise their rights and take advantage of programs and services to improve their quality of life through continued education and/or vocational training.
    • Sarah K. Lanzo, Director, Independent Living of Niagara County

  • Surviving and Thriving in a Managed Care Environment
    As implementation of mandatory managed care and managed long term care moves full steam ahead in New York, Independent Living Centers must partner with Managed Care Organizations (MCOs) to ensure the incorporation of Independent Living in Managed Care Models and the Affordable Care Act (ACA). This workshop will discuss opportunities and best practices for ILCs to thrive in a managed care environment. We will also identify strategies and tactics for Centers so they can continue to advocate and provide services to their consumers as well as sustain and grow their core business.
    • Merrill Friedman, Vice President for Advocacy at Amerigroup Corporation
    • Bruce Darling, President and CEO, Center for Disability Rights

  • The Ongoing Federal Budget Fight: Action Campaigns Across New York
    Since the 2010 elections, Congress and the President have been engaged in a protracted political battle over federal budget policy, and advocates for various constituencies, including the disabled, have mobilized to assert the public's interest. Among the things at stake are the future of Social Security, Medicare, Medicaid, SNAP/Food Stamps, SSI, and other vital social programs that millions rely on – all are in the bullseye of anti-deficit hawks. Here in New York, the statewide, multi-constituency "Restore the American Promise" (RAP) campaign, and its New York City component, "No Bad Grand Bargain", are spearheading the fight-back. Learn how various advocates and activists across New York are responding together to engage our Senators and Congressmembers, the public, and the media, and how the disability community can participate in and enhance these campaigns.
    • Mark Hannay, Director, Metro New York Health Care for All
    • Mary Clark, Southern Tier Regional Director, Citizen Action of New York
    • Heidi Siegfried, Health Policy Director, Center for Independence of the Disabled–New York

  • NYAIL has been at the forefront of advocacy and implementation efforts for the Community First Choice Option (CFC) in New York. The State committed to and is in the process of implementing the Community First Choice Option (CFC), with a target start date of October 1, 2013. CFC, made available to states through the federal Affordable Care Act (ACA), is a Medicaid program that creates a service delivery system and a comprehensive benefits package to provide assistance for physical, cognitive and social needs to support individuals with disabilities and older adults in the community. Implementation of CFC has the potential to fundamentally reform the state's Medicaid long term services and supports system to more effectively serve a complex cross-disability, cross-age population. Attend this workshop to learn about the latest updates on CFC in New York, and what it means for the disability community in our state!
    • Bruce Darling, Center for Disability Rights
    • Norain Siddiqui, Center for Disability Rights

  • Customized Employment individualizes the relationship between job seekers and employers in ways that meet the needs of both, therefore breaking away from a more traditional labor market approach and opening up employment opportunities for all. Job Path has been using this model since 2004, working with individuals with developmental disabilities in various ACCES-VR and OPWDD funded programs. This approach has been extremely successful in creating not only good employment matches but also increased job retention. In this workshop, we will explore the steps in our Customized Employment process – discovery, vocational profile, planning meeting, customized job development and support. We will discuss examples of jobs created as well as challenges and solutions.
    • Katrina Reese, Job Path, Inc.
    • Ryan Finger, Job Path, Inc.

  • Making Healthcare Accessible to People with Disabilities
    Independence Care System (ICS) and New York Lawyers for the Public Interest (NYLPI) have long heard complaints from individuals with all types of physical disabilities about the pervasive inaccessibility of health care in New York. These barriers exist in facilities of all sizes, including Hospitals, community clinics, and doctors' offices, in contravention of laws that mandate equal access for people with disabilities. The time for accessible healthcare in New York for people with disabilities is long overdue.
    This presentation will summarize the findings of the Report BREAKING DOWN BARRIERS BREAKING THE SILENCE regarding access to Women's Health Care and apply them to health care in general.
    • Marilyn E Saviola, Vice President of Advocacy and the Women's Health Access Program, Independence Care System

 

Sponsors


Presenting Sponsors:

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nysilc
SED logo with text
 


Key Sponsors:

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Break Sponsors:

CCFI

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